Clarence Central School District

Together We Make Learning A Way Of Life

Resources for Parents

  • This page will continue to evolve as new programs become available.  Did we miss something?  Please email program information to ClarenceSEPTSA@gmail.com

     

    ADHD

    ADDitude Magazine

    An ADHD magazine, community, and website dedicated to strategies and support for ADD and learning disabled adults, children and families.

     

    CHADD - Children and Adults with Attention - Deficit/Hyperactivity Disorder

    A national organization that improves the lives of people affected by ADHD through education, advocacy, and support.  CHADD is in the forefront in creating and implementing prgrams and services in response to the needs of adults and families affected by ADHD, through collaborative partnerships, advocacy, including training for parents and K-12 teachers, hosting educational webinars and workshops, being an informative clearinghouse for the latest evidence based ADHD information and providing information specialists to support the ADHD community.

     

    Autism

    Autism Services, Inc.

    Provides a wide array of individualized programs and services to support children and adults with Autism, and their families.  As a result we have amazing stories to tell! Success in academics, visual and performing arts, social skills, communication and life skills, with community integration at the heart of everything we do.  We invite you to take part in our mission to ensure that every person with Autism is given the opportunity to contribute to our community.

     

    Autism Society of WNY

    Our chapter's philosophy is to support the parents and caregivers of individuals with Autism Spectrum Disorder (ASD).  We do so by information and referral services, holding Parent Support Meetings and bi-annual workshops.  The Autism Society's efforts are focused on meaningful participation and self-determination in all aspects of life for individuals on the autism spectrum and their families.  We promote individual, parental and guardian choice to assure that people on the autism spectrum are treated with dignity and respect.  

     

    Buffalo RPM

    Educating, empowering, and encouraging to ensure everyone has a voice.  Not talking foes not mean not thinking.  We believe wvery person has innate intelligence and competence that can be demonstrated with the right teaching and support. Rapid Prompting Method (RPM) is an effective learning system that leads to communication.  It has helped many people with autism and related disabilities demonstrate knowledge, understanding, reasoning, and thought through age appropriate teaching and the use of multi-sensory prompts to elicit responses by making choices and spelling.  We are dedicated to empowering individuals and their families with RPM.

     

    Grand Island Autism Support Group

     We are looking forward to reaching more WNY area families.  We are not exclusive to Grand Island residents, nor are we partial to Autism.  We would like to strongly encourage parents dealing with other developmental and/or physical challenges to join us.

    (716) 430-5118

    GrandIslandNYAutismGroup@gmail.com

     

    Parent Group for Parents of Children with Autism Spectrum Disorder

    Provide a welcoming environment for parents and other caregivers of children with autism spectrum disorders to meet, share experiences, ask questions and receive support.

    RSVP to attend: (716) 878-7600 or email: jmertz@kaleidahealth.org

    Time: 6:30-8:30 pm

    Location: Aspire Building, 7 Community Dr, Cheektowaga, NY 14225

     

    Support Group for Parents of Teenagers with Autism Spectrum Disorders

    Provide a welcoming environment for parents and other caregivers of teenagers with autism spectrum disorders to meet, share experiences, ask questions and receive support.  All are welcome to attend, but group is geared towards parents of teenagers who may be transitioning to higher education, employment and/or independent living.  A group for Teens with Asperger's will be available at the same time with prior registration.

    Location: Wegman's Cafe, Back Conference Room, 601 Amherst St, Buffalo, NY 14207

    For more information: Jana 878-7417 or jmertz@kaleidahealth.org

     

    Cerebral Palsy

    Cerebral Palsy Association of New York State

    The mission of Cerebral Palsy Associations of New York State (CP of NYS) is to advocate and provide direct services with and for individual with cerebral palsy and other significant disabilities, and their families, throughout New York State, in order to promote lifelong opportnities and choices for independence, inclusion and enhanced quality of life.

     

    College Support Services

    Western New York Collegiate Consortium and Disability Advocates (WNY CCDA)

    A group of college disability service providers, agencies and disability advocates who focus on students with disabilities and the transition to college.  The Consortium hosts college fairs, various trainings, and also has published materials for reference.  On their website information can be found on: (1) effective college planning manual for students with disabilities, (2) a reference guide to assistive technology, (3) local college information sheets, (4) information on upcoming CCDA events.

     

    Down Syndrome

    Down Syndrome Parent Support Group of WNY

    The Down Syndrome Parents Support Group of WNY is a non-profit organization consisting of parents and families of children with Down syndrome.  We seek to raise awareness of Down syndrome while enhancing the lives of people with Down syndrome.  The organization's informational and social events provide a broad range of opportunities for families to support and encourage each other.  We provide a website as a continually expanding resource for those affected by Down syndrome in the WNY area.  

     

     Eating Issues

    Spoonful of Love

    This group focuses on parent's needs and provides: feeding information and resources, networking and sharing opportunities, and emotional support

     

    Epilepsy

    Epilepsy Association of WNY

    Family member counseling provides services to the entire family unit to promote more positive adjustments to changes brought about by the diagnosis of Epilepsy in the school aged child.  More effective communication amng family members is encouraged; as are more functional relationships between parents, parents and children, and within sibling groups.

     

    General Support - Not Diagnosis Specific

    Akron Parents of Children with Special Needs

    Parents helping parents deal with the everyday stresses of having a child with special needs.  You are not alone!  We strive to educate, problem solve assist and encourage each other through the day to day task of providing for a child or young adult with special needs.  Through parent run support discussions and workshops we promote advocacy and reasurance to parents, family members, and caregivers.

     

    Disability.gov 

    To help you find the disability information you need more quickly.

     

    Disability Scoop

    Founded in 2008, Disability Scoop is the nation's largest news organization devoted to covering developmental disabilities.  With daily coverage of autism, intellectual disability, Down syndrome and more, no other news sourse offers a more timely and comprehensive take on the issues that matter to the developmental disability community.  Readers include teachers, special educators, school administrators, therapists and other disability professionals in addition to parents and caregivers.  What's more, lawmakers and the nation's most influential disability advocates rely on Disability Scoop to stay in the know.

     

    Early Childhood Direction Center (ECDC)

    A program to help professionals and parents of children with special needs, birth to five.  The ECDC provides free information, referral, technical assistance and support to families, professionals, and community agencies concerned with children birth to five suspected or diagnosed delays or disabilities.  The ECDC also provides assistance to early childhood programs to improve options and oportunities for preschool children with developmental delays or disabilities served in typical early childhood settings.  We provide ongoing community programs for both parents and professionals in the counties of Erie, Niagara, Cattaraugus, Chautauqua, Allegany and Orleans.

    (716) 408-2589

     

    Empower

    Every situation is different.  Every individual has different circumstances, needs, and goals.  Our job is work with you to navigate the system, and identify the best services for you.  The staff at Empower will guide you or your loved ones in receiving individualized services so they can receive the best possible care.  Our goal is to ensure better health, personal growth, more independence, and community involvement.  Together we EMPOER individuals to lead their best possible lives.  

    (716) 297-0798

     

    Families' Child Advocacy Network of WNY

    Families' Child Advocacy Network is an independent, non-profit organization designed for and created by family members for the purpose of ensuring access to needed support, information, and services to all families in Erie County raising children with emotional, behavioral and/or social challenges.

    (1) City Roundtable - This group welcomes all parents, grandparents, foster parents, and caregivers raising children with social, emotional, and/or behavioral needs.  Share your experience and strength and learn to establish a voice in your children's system of care.

    (2) Father's Group - This group welcomes fathers, grandfathers, and male caregivers raising children with special behavioral needs.  This is an opportunity to share your experiences, learn how to establish a voice for your children and to be the caregiver your children need.

     

    Kinship Family Support Group

    Working hand-in-hand to make families stronger.  Gateway Longview's Kinship Family Support Group is here to help the growing number of families in Erie County that have stepped forward to care for their kin.  Meetings offer a safe place where caregivers can receive support, resources, and education.  Our team works with each family to improve well-being and prepare for challenges that may arise when caring for family members.

    When: 3rd Wednesday of every month, 5-6:30 pm

    RSVP: Heath (716) 783-3100 ext 3181

    **Childcare is available IF families register two weeks before the date of the meeting

     

    Learning Disabilities Association of America

    LDA visualizes a world in which: all individuals with learning disabilities are empowered to thrive and participate fully in society; the incidence of learning disabilities is reduced; and learning disabilities are universally understood and effectively addressed.  LDA's mission is to create opportunities for success for all individuals with learning disabilities and to reduce the incidence of learning disabilities in future generations.

     

    Learning Disabilities Association of New York State

    Our vision is a world in which individuals with learning disabilities experience acceptance, respect, dignity, and full participation in the community.  The mission of the Learning Disabilities Association of New York State, is to create an environment that supports, informs and empowers individuals with learning disabilities throughout their lifespan.

     

    Mens Forum

    The men's forum is open to fathers and male caregivers of children with developmental delays, whether due to Down syndromw, genetic anomalies, medical problems or unkown reasons.  The forum meets in the evening once a month throughout the school calendar year, ending in June.  There are ongoing discussions about coping with the handicapping conditions - the stresses, challenges, and rewards of being a father/caregiver of a child with special needs.  There are also many pratical discussions about what people are doing for their kids and how to access additional services.  The group always welcomes new members.

     

    Mommies of Miracles

    The world's largest virtual support group for mothers of children who have medical complexities life-limiting conditions, or developmental disabilities.  The missions of Mommies of Miracles is to eliminate the isolation mothers of exceptional needs children experience on a daily basis by providing an extended network of resources, products and services, grief support, family matching and hope.

     

    Parent Network of WNY

    We are a not-for-profit agency that provides education and resources for families of individuals with special needs (birth through adulthood) and for professionals.  We provide 1:1 support and education through resources, workshops and support groups to assist families of individuals with disabilities to understand their disability and navigate the support service system.  Staff specialize in empowering parents and family members to communicate effectively with professsionals and to successfully advocate for their children.  

    Location: 1000 Main St, Buffalo, NY 14202

    Contact: (716) 332-4170, email: info@parentnetworkeny.org

     

    Parent to Parent of New York State

    Parent to Parent of New York State builds a supportive network of families to reduce isolation and empower those who care for people with developmental disabilitites or special healthcare needs to navigate and influence service systems and make informed decisions.

    Parent to Parent Support - Parents are matched, based on their request, with a trained Support Parent who has a child with a similar disability, chronic illness, health care concern or to help with parenting issues.  Over 1,300 parents have entered our statewide support parent network.  Parents and other caregivers are offered the opportunity to connect 1:1 with a parent or caregiver of an individual with the same/similar disability or special healthcare need - someone who has "been there".

     

    Retail Savings Guide

    A guide containing discounts, service and special offers available to people with disabilities.

     

    Sibling Leadership Network

    To provide siblings of individuals with disabilities the information, support, and tools to advocate with their brothers and sisters and to promote the issues important to them and their entire families.  The purpose of the Sibling Leadership Network if to promote a broad network of siblings who share the experience of disability and people concerned with sibling issues by connecting them to social, emotional, governmental and provisional supports across the lifespan enabling them to be effective advocates with their brother and sister, and to serve as change agents for themselves and their families.

     

    WNY P.A.D.D. 

    This is a virtual support group located on Facebook.  WNY P.A.D.D. is a group of parents that have children with autism or other developmental disabilities.  We've become advocates by "living the life".  Our goal is to fight to make things better in WNY for our children and provide support to other families.

     

    WOW Moms

    A women caregivers' group for women who care for children with special needs.  Exceptional presenters, including past alum parents, have offered much knowledge, education, and inspiration.  The group, which is open to those enrolled in other agencies programming as well, is an opportunity to enjoy the company of others and topics of discussion based on the expressed interests of the group attendees.

     

    Rare Disorders

    NORD (National Organization for Rare Disorders)

    A patient advocacy organization dedicated to individuals with rare diseases and the organizations that serve them.  NORD, along with its more than 260 patient organizations members, is committed to the identification, treatment, and cure of rare disorders through programs of education, advocacy, research, and patient services.

     

    Tourette Syndrome

    Tourette Association of America - Greater New York State Chapter

    Every third Wednesday of each month, the organization holds a support group at the Kenmore Library on Delaware Rd in Kenmore.  All are welcome to attend.

     

     

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